I am Keri - wife of my best friend, and mother of 3 beautiful children. Welcome to a little piece of our life! I've recently been using this blog to chronicle our journey to wellness as my family and I fight to heal from Lyme disease.
Tuesday, May 26, 2009
Big Boy Bed
His bed was delivered this afternoon, and we worked feverishly to get his room put together by bedtime this evening! Luca was very excited about the new bed - especially the sheets with cars on them. He's now fast asleep and I can't wait to go and take a peek!
Thursday, March 19, 2009
March Birthdays!
Yesterday was Bella's 5th birthday. While we were in Puerto Rico, Luca celebrated his 3rd birthday with a McQueen cake at Nonna and Pappy's. We then had their birthday party when we returned with a Mickey Mouse theme. Bella's birthday finally arrived and she chose a Care Bear cake. Now that we've exhausted all possible birthday themes, next year should be a challenge!
The video shows Keith bringing Bella her present - a Hello Kitty bike with PINK tires! She really doesn't show much excitement, but she rode at all over the house last night as well as all morning outside today.
We waited until yesterday to give Luca his presents from us, too, since there was so much going on at their party. The video shows him opening a John Deer talking tool belt and hat - these kids (and Keith) are John Deere people! The very sight of a green tractor evokes so much excitement.
Luca also got his very own Leapster so that he doesn't have to fight for Bella's anymore.
Puerto Rico
Thursday, March 05, 2009
Big Trucks!
Wednesday, March 04, 2009
Tuesday, March 03, 2009
We Made It!
Today was the first time I ever fish-tailed in an airplane. We finally took off from Philadelphia at 6 pm this evening. Despite watching the snow plows work on the runways all day, it was still covered in ice when we took off, causing the plane to swerve all over the runway just before we got into the air! A few palpitations later, we were safely above the clouds and said good-bye to all of the messy snow and hello to a 4 hour flight to San Juan.
We are now finally here - it's 1:30 am (we are 1 hour ahead of east coast time), and I'm ready to hit the sack! I'm also ready to wake up to some sunshine!
We also found out that Verizon Wireless doesn't have service here, so the entire trip will be cell-phone free! Thank goodness for e-mail... I can keep up with the kids that way. There won't be anymore pictures until we get back because I forgot the USB cord for the camera and my cell phone won't work, so I'll post in a few days!
Monday, March 02, 2009
Stuck in Philly
We got up this morning at 5 am to get to the airport. When we got there we realized that our flight to Charlotte had been delayed, so we were going to miss our connection. We did, however, manage to get a flight to Philadelphia where we will have a 6 HOUR layover, and then leave for San Juan early this evening. As you can see, the runway was pretty scary when we landed.
We are optimistic, though, that we WILL wake up in sunny Puerto Rico tomorrow morning! Airports are so fun.
Sunday, March 01, 2009
Kiss Me!
Saturday, February 21, 2009
House Tour
Foyer
Breakfast Room
Family Room
Family Room
1st Floor Guest Room
Play Room
Play Room
Master Bedroom
Master Bath
Bella's Room
Luca's Room
Basement Bar
Bar Area
Theater Room
Theater Room
Weight Room
Basement Guest Room
Saturday, February 07, 2009
Friday, February 06, 2009
Noah's Appointment
She actually removed a stitch that remained in is chest wound, which is healing okay (not perfectly, but okay!)
On Tuesday, Noah will have a cbc done (bloodwork) to make sure that he is doing okay with the antibiotics and to check on his anemia. He will have a chest x-ray in one month!
That about does it! The report was good and we're all so glad!
Wednesday, February 04, 2009
Noah News
Noah still has is PICC line in and is receiving IV antibiotics every day. A home health nurse came on Monday to document that Jaime (a home health nurse, herself) could administer the meds and care for the PICC line. From that point on, Jaime has been giving Noah his meds, dressing the wound in his side and caring for his central line.
On Friday Noah will see the ID doctor at Children's again. She had called Jaime and told her that she will most likely keep Noah on the IV abx for 2 weeks because it took so long for him to become afebrile. Their goal is to prevent any further fluid accumulation in the lung and keeping him on the abx for an additional week may help.
Noah went back to school yesterday, and had a bit of a rough time with the transition. However, today went much better! Jaime said that he still is very pale, though, and we need to continue to pray for increased strength for Noah.
Thank again for reading this update. He's in the homestretch!
Sunday, February 01, 2009
Post Op Day 3
Noah will have one more dose of IV antibiotics today and will be discharged later this afternoon!
He is apparently very excited to see his cousins, Bella and Luca, and they can't wait to see him.
Noah will still be on the IV antibiotics at home through his PICC line until Saturday. On Friday, however, he will go back to Children's to be examined (and have a possible CT scan) to determine if he is in fact ready to come off of them.
We are very excited that Noah will be with us for the Super Bowl, and he is looking forward to the party!
Again, thank you so much for all of your prayers. Your support for this family has been overwhelming, and they are so blessed to have you.
Please continue to pray for Noah's healing, as we don't want another repeat appearance at Children's Hospital ER! This week we need to pray for the remaining fluid to be dispersed from his lung and for the infection to clear (meaning no more fevers.)
Stay tuned for more updates!
Happy Birthday, Noah!
Saturday, January 31, 2009
Post Op Day 2
Noah was doing much better today, and he had a much better night last night. He was in pretty good spirits when we were there, and I took lots of pictures (but managed to leave my camera at the hospital!) I will post them tomorrow after I get it back!
A few hours ago, sugery ordered a chest x-ray to determine if they could take the chest tube out today. It must have looked good to them, because they pulled the tube a few minutes ago. This is a very good sign that Noah is progressing extremely well. He was actually up and around a bit today and managed to take a "walk" around his floor.
Noah will have another chest x-ray in 3 hours to determine if any air was let in during the removal of the tube. If that x-ray looks good, surgery will most likely sign-off. Then it will be up to Medicine to decide when he can be discharged!
Look for another update tomorrow afternoon with pictures!
Friday, January 30, 2009
Post-Op Day 1
Aside from the fever, Noah is naturally in pain and has some nausea. Please pray for his comfort during this expected rough patch.
Jason is at the hospital with Noah now, as Jaime was able to get away for a few hours to take a much needed shower. As you can imagine, she has had no real showers, no sleep and no appetite through all of this, so please pray for strength for her as well.
Keith, the kids and I will be leaving late this afternoon to go to Brownsville. We will finally be able to visit the little guy (just in time for his 8th birthday tomorrow), so we look forward to seeing him for ourselves!
My next post will be tomorrow. I will bring my camera so I can post some pictures!
Thursday, January 29, 2009
Out of Surgery!
The surgeon was able to get most of the infection out of the lung and was optimistic that after allowing the chest tube to drain for 2-3 days, Noah would be ready to come home.
Well, we can all thank God that the day went as it did. As it turned out, the schedule being the way it did landed Noah a great team. The nurses told Jaime that Dr. Kane was "the best" and that he was the one they would want for themselves!
I truly wanted to post this earlier, but this all happened while I was in the middle of putting the kids to bed!
We are all so relieved... Jaime really sounded good, which made me feel good. Jaime and Jason will both stay with Noah at the hospital tonight - they are in the process of trying to find Jason a chair to sleep in!
Again, Jaime sends her thanks for all of the continued prayer, love and support. We are so greatful to have such faithful friends and family.
God is so good and we are very blessed.
I will continue to update the blog with any additional news!
In Surgery
Thanks for your prayers!
Delayed!
Noah's surgery has been moved to between 4 and 5 pm. The wait is frustrating (and the poor kid can't eat anything)!
Oh well, that gives us more time for more prayers! As soon as he goes into surgery, I will update.
The Latest on Noah
Thank you all for your outpouring of support and prayers for Noah.
Wednesday, January 28, 2009
Noah Update
Anyway, the latest news from Children's is that the docs have decided to forgo the TPA (the medicine they were going to put into the chest tube to lyse the adhesions). They feel that it will just probably not work.
Noah is on the schedule to have the VATS tomorrow. This SHOULD work, and is actually what Jaime was hoping for instead of just waiting for things to get worse.
This is surgery in the operating room which involves general anesthesia. If you are interested in learning about the VATS, click on this link: http://www.thoracicsurgery.medicine.pitt.edu/content/Video_Assisted_Thoracic_Surgery.pdf
We ask that you all please pray for him tomorrow. We do not yet have his surgery time, but we know that he is on the OR schedule.
Jaime is so grateful for all of your love and prayers. (Oh, and don't forget to pray for her and Jason, as well.)
Thanks all!
Noah is sick...
This is a pretty serious situation, and everyone close to Noah is concerned. I'm writing all of this because my nephew and his family (Jaime, Jason and Jilli) need your prayers. If you are reading this, please pray for Noah. We believe that he will be healed and recover, and we are asking God for strength for Noah, encouragement and comfort for Jaime and Jason, and wisdom for the doctors who are caring for him.
Thanks!
If you are interested on reading a medical article outlining exactly what Noah is going through, click on this link: http://emedicine.medscape.com/article/1001747-overview
Tuesday, January 20, 2009
A Great Day in History
Happy Birthday, Grandma.
We miss you and love you!
A picture of Grandma holding Bella at only 5 months old!
Monday, January 19, 2009
Going for the Six Pack!
Yeah... we're a little excited! It was a beautiful night in Virginia as we watched Pittsburgh trounce Baltimore. The cool thing is, for as close as we are to Baltimore, there seems to be much more support for the Steelers around here, which is very comforting to me! It was awesome to go to church yesterday and see some black and gold jerseys. Many of the folks here have nothing but great things to say about the steel city, and I couldn't be prouder to bleed black and gold!
Go Steelers!
Sunday, January 11, 2009
Go STEELERS!
Bella and Luca now totally respect the fact that sometimes, Mommy and Daddy just have to watch football. Today when the game came on, they each ran to their rooms to grab their Steelers jerseys!
Post-game victory snack. Hey... the Steelers won - they can have a little sugar!!